Luck Fupus

A lupus blog…

“When it hasn’t been your day, your week, your month, or even your year.”

Last night when I wrote that blog post, I wasn’t in the best frame of mind. Thank you, Captain Obvious. I was literally typing through tears and stopping every 2 minutes to wipe the snot dripping from my nose. That said, it felt really good to let all my feelings out, like word vomit. I don’t know who in my … Continue reading

“How many times can I break til I shatter?”

It’s been a hell of a week, even more of an emotional roller coaster than the last. I don’t even know where to begin, as my brain is just one giant clusterfuck at the moment. Hubby’s dad had a heart attack early in the week. Instead of going straight to the ER when he began having chest pain, he went … Continue reading

“Can’t think of anyone as lovely as you…”

When I was 3 or 4 years old, I asked my Mom-Mom how old she would be on her next birthday. She replied with “29.” “But Mom-Mom,” I asked, “how can you be 29 if Daddy is 43?” I don’t remember her answer, I just know that I was gullible enough to believe her. So every year after, even once … Continue reading

“Have I read too much fiction? Is this how it happens?”

It’s twenty after eight on Sunday night, and already the streetlights are on and it’s completely dark outside. We are on the last legs of summer. I always get a little sad when it begins to get dark early, but after this unusually hot and humid season, I am welcoming the cooler weather and no more air conditioning with open … Continue reading

“Here we are face to face, a couple of Silver Spoons…”

A few people have asked me why I end some of my tweets with the hashtag #spoonie. Those of you in the lupus community know what I’m talking about, the amazingly written Spoon Theory. Click the link to learn what life with lupus is all about The Spoon Theory

“Now that don’t kill me, can only make me stronger…”

About 3 months ago, I went to cheer on one of my best friends as she gave a lecture to University of Pennsylvania medical students on her experiences and battle with Cushing’s Disease, a rare disease in which your body produces too much cortisol. It’s like being on a gajillion (like that medical terminology?) milligrams of prednisone each day. This … Continue reading

“We gon’ party like it’s yo birthday…”

*I wrote this on August 8th, but forgot to post.  Twenty-four hours into my 25th  31st year, and I have to say, so far so good. It was a much needed, low-key day. It didn’t really feel like my birthday, but considering I spent my 30th drunk off my ass sending texts I had no business sending, I was probably … Continue reading

“I’m a model you know what I mean…”

I’m too sexy for my HAIR (Yes, that’s a big friggen clump of my hair that fell out) I’m too sexy for my BLOOD (The lab slip for my blood draw this AM… 18 tests!) I don’t have anything exciting to blog about today, so I figured I would laugh about the amount of hair I’ve been losing and the … Continue reading

“All I want is to feel this way…”

On Thursday I went to the new rheumatologist to get a second opinion. I was nervous and didn’t know what to expect. As I mentioned, I read a ton of discussion boards where people with lupus said they had their diagnosis taken away. I guess since there is no one definitive test to diagnose lupus (wouldn’t it be cool if … Continue reading

“Every new beginning…”

Happy August! The start of August feels like it’s the beginning of the end of the summer. The rate at which this year is flying by is simply alarming. In the blink of an eye, I’ll be wearing my Ugg’s and sweaters. My mind is going a mile a minute. Or maybe I just watched one too many reruns of … Continue reading

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Somebody’s watching me…

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