Happy Hump Day, Loves!! I have to catch up on my blog reading and replying back to comments from earlier this week. My busy weekend pissed off the lupus. Damn, she has a temper. I don't know where she gets that from.
I managed to get to the gym with Brie Tuesday morning, but after 10 minutes of a slow paced
Not cool, lupus. Not cool.
OK, maybe for once it's NOT the lupus' fault, it could be the
See. It always comes back to the lupus.
Speaking of lupus, I wanted to fill you all in on some exciting news!
MY CT SCAN IS NEXT MONDAY!!!!!
The pulmonologist was not messing around when she said "Oh, let them try to mess with me!" Woman got that shit done. And you know what? I love it. When dealing with an incurable, chronic disease, there's nothing better than someone who is ready and willing to get shit done.
My appointment with her last Friday went well, but as I suspected, without the CT scan, there isn't anything currently she can do for me. She needs a picture of what's going on inside.
She agreed that Dr. M (rheumatologist) was right to refer me to her, and thus far all the testing he has ordered is everything she would be doing herself. It's quite reassuring that transferring my care from Cooper to Jefferson has been the right decision. With something as unpredictable and subjective as lupus (any autoimmune disease for that matter) it tends to get rather difficult with having to see so many specialists.
Too many hands in the pot, if you will. I see a rheumatologist, hematologist, neurologist, cardiologist, oncologist, gastroenterologist, opthamologist and now a pulmonologist on a regular basis. That's an ass load of ologist's. Add in my congenital heart defect, and it makes my case even more difficult, because so many adult physicians don't know enough about congenital heart defects to feel comfortable doing more aggressive treatments. But I have a good feeling about this trio of Dr. M. (rheum), Dr. D-squared (cardiac) and Dr. C. (pulmonary).
The pulmonologist feels like my shortness of breath/lung issues could be 3 possible causes.
*WARNING! Boring science/medical stuff ahead!*
- Pulmonary embolism- blood clots elsewhere in the body that have broken off and travel to the lungs where they can block a pulmonary artery. We both feel this is highly unlikely due to the fact that I would probably be in more acute distress.
- Interstitial lung disease- a cluster of lung disorders that cause scarring of the lungs that gets progressively worse over time. The damage already done is irreversible, but medications/treatments can prevent further lung damage. The scaring in my case would be caused by lupus. I also have a double whammy against be because I spent much of my early childhood on oxygen due to my congenital heart defect, tetralogy of Fallot. The air we breathe is approximately 21% oxygen, whereas the oxygen I was receiving via mask was 100%. Over time, the high concentration of O2 can damage lung tissue. We know from the pulmonary function tests I had in December that there is moderate lung damage, but unfortunately, there's no way to go back in time and see how much damage had already been done prior to lupus. Where's Marty McFly when I need him.
- Low hemoglobin- this would be the much too simple explanation, and we all know this never happens in my case. Hemoglobin is the protein in red blood cells which carries oxygen. Low levels of hemoglobin means less carried oxygen. If hemoglobin drops low enough, this can cause a person to become symptomatic, ie- short of breath, fast heart rate, pale, fatigue. I did some investigating, and over the past few months my hemoglobin has ever so slowly, so not to be noticed, been dropping. Now again, I'm an odd case because of my heart. As a compensatory mechanism to make up for a heart not effectively pumping blood, the body produces more hemoglobin to carry what oxygen there is. (have I lost you yet?) So if you look back at my blood work, I've always had higher hemoglobin levels from what is considered "normal." Even though this drop may not cause symptoms in a healthy person, since my body isn't used to these lower levels, it could be causing symptoms.
Can you believe #3 is the easy explanation??? I hope you aren't cross eyed, I really wanted to lay it all out for you.
So for now, it's still a mystery until next Monday.
And to lighten up the mood, I'm going to talk about my makeup. Some of you asked for better pictures of the ideas I came up with to better organize my makeup. I saw a YouTube video where a woman took exact measurements of her makeup, the dimensions of the drawers, and figured out exactly how many serparate compartments she could make for each drawer. Not that I don't love a good math problem, but it made me dizzy. Especially when she went on to say how she cut each piece from foamboard and constructed said organizer. Homegirl clearly hasn't discovered The Container Store.
In an effort to save some money, and in one of my best ideas ever (like ever!) I realized ice cube trays would be perfect for holding things such as my MAC Paint Pots, Maybeline Color Tattoos, Bare Minerals eyeshadows, ect.
My first ever Pinterest project from 2010! Dollar Tree glass jars and floral arrangement filler from WalMart
Dollar Tree ice cube trays (3 in a pack!)
Plastic desk organizer from Target, Dollar Tree ice cube tray and to the right a clear plastic bin from The Container Store
2 lipstick trays and long plastic bin from The Container Store
Hubby: "You mean to tell me you'll clean to take pictures for your blog, but not just because you made a mess?"
Me: "Actually Kato, that's exactly what it means."
Hubby did not pick up on the kick ass 90's movie reference. Fail.
Linking up with Shanna for Random Wednesday