Luck Fupus

A lupus blog…

“Between how it is and how it should be…”

If you asked me five years ago what I’d be doing today, I would have no doubt given you a cookie cutter answer. I’d be a nurse practitioner at CHOP, happily married to Steve, living in our beautiful home with our precious daughter Vivien (named after Vivien Thomas, of course), and in talks about giving her a baby brother or … Continue reading

“I know that I can’t take no more, it ain’t no lie…”

Happy Tuesday, my loves! So I’m just gonna get right to it, because I wouldn’t be a good blogger if I didn’t address The Great Miley Performance of 2013. I was happily watching Jon Taffer make horrible excuses for bar owners cry on Bar Rescue, so I didn’t see any of the VMA’s while they were going on. Not that … Continue reading

“I guess I got a bad habit…”

Hi my loves! I don’t think anyone is as happy as me that it’s Friday, and I don’t even work these days. That said, my week has had more poking, prodding, drug infusing, boobie squishing, and hip exercises than any one person should have to endure. So boys and girls, I’m here to fill you in on a little secret. … Continue reading

“…it’s the heart that matters more.”

With the countless medical issues that have come up in my 32 years, I have been awfully lucky to be in the care of some of the best doctors in the world. Most notably, my cardiologists. Since I met my first cardiologist when I was six weeks old, I’ve only had two others. There’s something to be said for that. … Continue reading

“…she must be tired of something.”

T-G-I to the F, my loves! Today would be Mom-Mom’s 91st birthday. Happy Birthday Mom-Mom! No doubt you’re being your dazzling self up there! God, I miss her. Tuesday’s Venofer infusion kicked my ass, so I’ve spent the past 2 days in bed. Exhausted doesn’t even come close. True story Via I forgot how much I hate this medication, and … Continue reading

“Ain’t nobody gonna slow me down. Oh no, I’ve got to keep on moving…”

Happy Hump Day, my loves! One again, things have picked up in Lupus Land, and it’s been a steady flow of tests and treatments. Of course, I refuse for that to be the only reason to leave the house, so I’ve been squeezing in some fun birthday activities for the Month of Marla. But, after Tuesday’s infusion, I’m pretty sure … Continue reading

“It’s not unusual to be loved by anyone…”

TGIF bitches! Today is my dad’s birthday! Happy birthday, Daddy!!!! 1. My little birthday mini vacay was cut short due to having to come home for a doctors appointment, but let me tell you, it was so nice to be away. Steve and I had a great time, and even though the weather wasn’t super, we got in some beach … Continue reading

“Don’t want no Captain Crunch, don’t want no Raisin Bran…”

Hi my loves! Today I have a special treat while I am still away on my mini vacation.  My good friend and blogging buddy Steph, the genius behind Life According to Steph, has been kind enough to whip a little something up.  She’s the Martha Stewart of the blogging world. Minus the felony charges.  Hello Luck Fupusers. My name is … Continue reading

“Sixteen candles (x2) make a lovely light…”

It’s my birthday, bitches!!!! That’s right, my favorite day of the year. The one day when it’s perfectly acceptable to be “it’s all about me,” and people call me all day leave Facebook posts on my wall saying happy birthday. And yes, I know only about 6% of you actually know when my birthday is, and the rest rely on the … Continue reading

“Don’tcha wanna dance, say you wanna dance!”

Hi my loves! As I sit and write this, my hips and every other joint in my body are throbbing. I spent my Saturday night with some of the greatest people in my life; the friends, that when I’m with them, seem to make me forget all my troubles. It was Sean & Angela’s wedding day! A day that started … Continue reading

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