Luck Fupus

A lupus blog…

Take this pink ribbon off my eyes…

TGIF! This week went pretty fast, and I’m happy the weekend is here. In terms of doctors/tests, I only had one appointment this week. Next week I have a doctor appointment/test/chemo every single day… except Friday! I’m gonna be one miserable mofo by the time next Friday rolls around. Thursday is my first infusion at McDicky’s office. I’ve always gotten … Continue reading

A fighter dancing through the fire…

Happy Hump Day my loves. I have nothing exciting to report on today, so this will be a bunch of random, jumbled confessions/thoughts. -I’m really cranky that I have to wait for the alarm company to come and install whatever they are installing. They gave us a 5 hour window bw 8-1pm. What. The. Fuck. Could you imagine if I … Continue reading

This is a public service announcement… with guitar

OK, so it really isn’t a PSA, I’m actually asking for something from you. And there’s no guitar, just pretend that The Clash is playing. Better yet, here, now you can listen. I need you all to do me a HUGE favor. Huge. And it’s free, and will only take but a moment’s time. My nephew PJ has autism, and … Continue reading

In the end, only kindness matters…

Ahhh, Friday! I love you so! 1. Steve and I are one month short of our 6 year anniversary, and I’m happy to say that over the years, I’ve kept in touch with our photographer. While it’s mainly through Facebook, we’ll shoot each other the occasional text, and he even answers my “How do I do this on my fancy … Continue reading

I stay at home with my disease…

Last Tuesday I had an appointment to see my primary care physician, as she had to fill out paperwork for my disability, but wouldn’t do so without seeing me. After being called “Maria” by the nurse and being told I don’t know how to spell my name, I was already cranky by the time the good doctor walked in the … Continue reading

Better stand tall when they’re calling you out…

Hi my loves! I haven’t blogged in a week, and I feel out of the loop. In this past week, I’ve lost some readers, and I suspect it’s because I don’t blog on a regular basis. Or, maybe you hate me. Whatevs. It’s not about the numbers (oh so cliche!), but it does tug at the ole heart strings to … Continue reading

These are my confessions…

Happy Hump Day. -Yesterday I went back to sleep and slept through the gym class for people with arthritis. -I saw my primary doctor yesterday, and I started to cry when she asked questions about my tubal ligation. -The demons then followed me to Shop Rite and I got very huffy with the woman who checked me out. -I always … Continue reading

I can see clearly now…

Picture it. Philadelphia. 1989. In the school nurse’s office trying to read the letters on the eye chart. I wasn’t drunk, and I certainly wouldn’t be for another eight twelve years until I could legally drink. Why couldn’t I see the letters? It turned out I had an astigmatism, and two weeks later, I was the proud owner of 2 pairs … Continue reading

Even your emotions had an echo, in so much space…

Happy Friday, my loves! It’s been a long week, and I’m happy the weekend is here. I know, I know, I’ve been out of work on long-term disability for almost two years, what does it matter to me? Lupus is less exhausting on the weekends. IT MATTERS, BITCHES! And before I start, did you endorse me for the Wego Health Hilarious … Continue reading

Would you want me when I’m not myself?

Happy Hump Day, my loves. Mother Nature has been one saucy little minx. We got 10 inches of snow last Friday, followed by single digit temps, then 50 degrees with rain on Monday, and back to frigid temps on Tuesday. Bitch is crazy! Speaking of crazy, today I have an appointment with my new therapist/counselor. I’ve been seeing the same … Continue reading

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