Luck Fupus

A lupus blog…

Just a day, just an ordinary day…

Hello strangers. Last week was another bad week for me. The only day I left the house was Wednesday, for a doctor’s appointment. I’m quite certain if it weren’t for the appointment, I would have never left the house.
I’ve been taking an anti-depressant for a few years now, because, not only does it help with my depression/anxiety, it relieves some of my joint pain. Kills two birds with one stone. It took awhile to find the right one, and when I finally had, my insurance company stopped covering it last October after being on it for well over a year.
At that same time is when McDicky took over my care, he weaned me off and switched me to a medication he saw much better results with in his lupus patients. It was covered by my insurance, and he was right; it worked so much better than my previous anti-depressant. I noticed a decline in my joint pain and a huge elevation in my mood. 
Why is that McDicky always right?
Two weeks ago, I called my pharmacy to get a refill and was told my insurance would no longer pay for that medication. Awesome. McDicky wrote a letter and called the insurance company, yet they still refused. Seriously, what the hell is the point of going to the damn doctors if the insurance company is going to refuse to pay for prescribed medications? Do they think I want to have to take an anti-depressant? It drives me insane, how are people supposed to get better???
I ran out, stopped cold turkey (I couldn’t afford the almost $700/month price tag), and crashed. 
I crashed hard.
It took me a day to realize that I was withdrawing from the medication. I’m talking head spinning, nausea/diarrhea, fatigue, aches, mood swings, bizarre, vivid dreams, and so much more. It wasn’t quite as dramatic as Dr. Drew’s Sober House, but holy hell, it was rough. I’m better this week, but I still don’t feel quite right. I’ve been prescribed something else, and now I’m waiting patiently for it to get through my system and kick in.
It’s always something…
*****
Emily from Words I Wheel By is a fantastic blogger I was connected with through the NE Bloggers Network. Emily was born with Larsen’s Syndrome, a rare neurologic disorder that affects her bones and joints, and due to her disease, she is wheel chair bound. I should mention that when Emily was 10, she was on Sesame Street. Jealous doesn’t even begin to describe it… 
I digress.
A great deal of her time is spent advocating for the disabled, not only through her blog, but writing for other online publications. Emily recently received her driver’s license, but unfortunately, does not have the funds to purchase a van adapted to her needs.
This is where you come in, folks. Emily entered a “Local Heroes” contest to win a wheelchair accessible vehicle (which can cost upward of $70,000), sponsored by the National Mobility Equipment Dealers Association. PLEASE, pretty please, go to her link and vote so she can win a vehicle, and gain some independence! C’mon, you all know how much of a bummer it was to have to rely on other people to get around. DO IT!
Vote For Emily!
*****

A happy HAPPY Birthday to my blog turned real-life Philly friend, Steph from Life According to Steph! Her birthday was on Saturday, but like me she celebrates her birthday the entire month! Stop by and wish her a happy birthday!
*****
Speaking of birthdays, a happy HAPPY birthday to my second husband, Adam Levine. Can’t wait to celebrate!
*****
April is just around the corner, which means it’s almost time for another spending freeze with Steph. Be sure to stay tuned for details and the date we will link up our results!
*****
My mom and dad have two cats, Heckle and Jeckle, brothers from the same litter. Last week Jeckle was diagnosed with metastatic intestinal cancer, and unfortunately doesn’t have a lot of time left. My parents are devastated, and my heart is breaking for them. Please say a little prayer that Jeckle’s days are pain free and full of snuggles. 
*****

Where is that plane? I can’t begin to imagine the roller coaster of emotions the family of the passengers and crew are experiencing. Day 11, and it’s all still a mystery. It’s hard to believe that something like this can happen in 2014.
I see a collaboration with Jack Bauer and Raymond Reddington. If anyone can find that plane, it’s those two. 
*****
And lastly, I’ve mentioned a million a few times that I was chosen as a WEGO Health Hilarious Health Activist finalist. I thought it was narrowed down to 10-20 finalists, but I realized there are 7 of us in my category. It’s such an honor to be recognized alongside the other fantastic hilarious health activists. Tune in Friday at noon (12pm EST) to WEGO Health when the winner is announced LIVE! Good luck to all my fellow finalists!!!

Crazy hair, don’t care.

Love you all.

Comments

  1. ugh sorry to hear that, M. i really do hope that this week is a bit better than last. major hugs, girl.

    this is a bit on the shady mcshady side but can your doc give you samples? typically, pharma reps will drop off boxes of that shit at the doctors offices and docs usually have them stockpiled. maybe you can ask for a few to get you through this … at least just until you can figure shit out with your insurance company. or if you know any pharma reps who specialize in lupus or depression/anxiety (is it an anti-depressant?) then they can give you samples of that. again, not so legit but at least it'll help with your symptoms until you get it sorted out.

    xoxoxo

    -kathy | Vodka and Soda

  2. oh that is so unfortunate. i was reading this all happy and excited- yay it's working! but why do they make you jump through hoops for medication?! it's ridiculous.

    good luck as a finalist!!

  3. Joey says:

    Oh maaaaan friend! I'm so so sorry you went through that last week. I really hope this new medication works for you and insurance STICKS WITH IT!!! I agree–Ins. companies end up being a bigger pain in the butt than help. Ugh. I'm sorry about your parents' cat, too 🙁 That kind of news is always heart breaking. I'm with you on the plane–where the eff is it? Don't we have satellites that can track everything/see the entire Earth? WHERE IS THE PLANE! I agree–let's get Jack Bauer on it!

  4. the insurance company pulled that crap on me when i was taking medication a few years ago…nothing like effing with someone whose already effed up to begin with, amiright? glad to see you back, I was wondering where you were!

  5. holli says:

    Effin Insurance companies!!! They piss me off so bad when they pull crap like this. Just cover the damn drugs and move on. There is a reason they are prescribed! So sorry you had to go through those painful and sickly withdrawals sweet girl. I'm so sad for your parents cat. I know thats got to be so tough to know your loving pet is sick.
    Ijust pray that those poor people are Ok on the plane. I just dont get it either! They are thinking its the pilots. Scoundrels i tell you!

  6. We've already texted about this, but to reiterate this is fucking BULLSHIT. F U insurance company. AHOLES. HAAAATE.

    So excited to continue bday celebrations with you and Brie later this month!

    5/6 for a link up date for the spending freeze?

  7. I'm so sorry you've been dealing with all this. It's appalling that you can't get the medication you need. I'm not very political but things like this rile me up!

  8. Rachael says:

    That is seriously SO frustrating/anger-inducing that insurance can decide all willy-nilly to just stop covering people’s meds, forcing them to quit cold turkey. I’m so sorry that your week was spent feeling like crap!! I hope you’re out of the woods. And I hope you have good luck with the new Rx.

    I voted for Emily! I hope she wins. Sesame Street?? I’m jealous. It’s crazy how expensive those vans are. What average family can afford something like that??

    Poor Jeckle.  That is so tough. I hope the time he has left is spent playing and lovin’ on Heckle and your parents!

    That whole plane situation is super scary and makes me soo sad for the families who may never know what happened to their loved ones. It gets me all choked up just thinking about it! And also makes me slightly paranoid about getting on another plane.

    Can’t wait until Friday to find out if you’re the big wiener!! Oops I mean winner!!! Good luck!

  9. Emily says:

    So first, thank you for the shout out! But more importantly, sorry this was a crappy week. Insurance is THE WORST. On the up side, you look fly in your wego party gear 😛

  10. AwesomelyOZ says:

    Good luck girlie and hope you win!! 🙂 Hope those antidepressants kick in too – it sucks waiting for something to happen. I would fight the insurance company like no one's business – they'd hate me by the time I'm done but I'd find a way to get them. Also, check with the pharm company who produces them, sometimes they can hook you up with ish 😉 Git'R'Dun! Stay inside it sucks outside anyway – its all cold and wet. Fuck that. I'm almost out of work and can't wiat momma needs a nap! Hope you're doing OK love, take care MJ! -Iva

  11. I'm sorry to hear this my friend. Insurance struggles are NO joke. I have one medication that you have to jump through all kinds of hoops to get filled otherwise its like $300 a month. Because ADD goes away the second you're over 18. Smh I hope McDicky is able to either find something else, or that we find someone at your insurance company with sense. Those people have to exist right? So proud of you for being a finalist!!! Also…thank you for the Adam gif. I needed that.

  12. Stephanie says:

    What the hell insurance company? That's some bullshit, isn't that the entire point of them?! Ugh. Yeah for being a finalist, I hope you win! And I'm thinking of your parents 🙁 Losing a pet is the worst, I hope he has a very happy rest of his little life.

  13. Alyssa Whitt says:

    Ugh. That sucks, Marla. Insurance companies. They know they have us by the grapes.
    SO sorry about your parents' cat! I can't even think about something happening to my two.
    LOVE LOVE LOVE your hair in that picture!

  14. Insurance companies suck ass, I hate them all!

    As for the plane, I'm sad for the families but I'm intrigued that an entire 777 and all it's passengers could just disappear. If you ask me someone stole it and landed it for late use as a weapon, I'm guessing some country is lying about what they saw on radar too.

  15. Kim Turner says:

    I don't understand insurance at all – I think that the whole thing is a huge scam!!! I'm sorry that you weren't able to get the meds you needed and ended up having such a shit week!
    I hope that this week is much better.

  16. Savanna says:

    Oh, Adam, I would totally… Never mind. Insurance companies freaking suck and always pull this kind if shit! I agree with Kathy- try to get some samples of you can!
    I hope you win, I think you should because you are badass!

  17. Steph G says:

    Who do I need to punch in the face? That's how that whole BS insurance thing makes me feel. You let me know and I'll take some bitches down. Also, good luck on Friday 🙂

  18. I've gone through withdrawal when trying a new medication… it's absolutely miserable… I'm so sorry. 🙁 Insurance is a fucking joke.

  19. Cheriese says:

    I'm sorry your week was so shitty 🙁 I do hope you feel a lot better this week, and I hope everything gets sorted out with your meds, damn insurance companies can be a pain!!
    I think it's super cute that you know when Adam Levine's birthday is! Well, I guess it's appropriate seeing as he's your second husband 😉
    You are totally rocking that button, it's a lot bigger than I thought it was (that's what she said!) You look amazing!!!
    Where is that plane?! Crazy scary!
    I'll be back here on Friday, good luck!!!
    Praying for Jeckle Xxx

  20. Chelsee W says:

    I hope things get better for you, but congrats on being a finalist! Just wanted you to know that I have been thinking about and praying for you:)

  21. Carly says:

    I really want/need to do the spending freeze, but I just feel like I'm setting myself up for failure with the need for maternity shit and baby shit.

    Insurance companies are horrendous. I love when I get the statements in the mail that tells me how much appointments, procedures, etc. cost and they give me MY price and the insurance company's price (which is always tremendously lower). Wtf. Same thing with the cash price on prescription. I actually have a little game I play with myself of "guess how much this would be if you actually had to pay for it." I have a prescription of hydrocortisone cream in Cetaphil lotion from my dermatologist (which, basically I could make on my own) and the cash price for it is over $200. For some lotion and some shit I could buy at the pharmacy for less than $10. Effing ridiculous.

  22. I will definitely be voting for Emily (thank you for spreading awareness!) I HATE health insurance companies and the pharmaceutical companies that jack up prices as long as they are able until generics can come out. WHAT is up with that!? They should be ashamed of themselves!! xo

  23. This is the best answer I've seen as to where the plane probably is:

    http://www.upi.com/Top_News/World-News/2014/03/19/The-startlingly-simple-theory-behind-missing-Malaysia-Airlines-flight-370/8341395247251/

    I'll never understand why insurance seems to think that cutting anyone off cold turkey is going to help anything. So sad. I hope it get sorted out.

  24. Oh man, I can only imagine the withdrawals…and why does insurance have to be so screwed up? That is so frustrating. I hope you can find something that works that doesn't make you feel like it's bankrupting you. How crazy! So sorry about your parents' cat. That is never easy. I voted for Emily…hope both she and you win your contests!!
    Eva Marie Taylor

  25. Ugh don't get me started on insurance both as a nurse and a patient it urks the hell outta me! I'm glad you have come down from the come down girlfriend, that shit is the worst! Words I Wheel By could quite possibly the be the best health activist blog name I' ve come across and I'm going to check her out now! Hope WEGO knows whats up and I see your name on that award! But seriously either way that is such a cool group of people to be associated with! Have a great weekend my friend!

  26. Gwen says:

    I hate insurance companies meddling with patient care!

    I'm really digging the idea of Jack and Red teaming up to find the plane!

  27. Myra says:

    Oh Adam Levine. He's totally my boyfriend also. Gor-geous.

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