Luck Fupus

A lupus blog…

It’s the freakin’ weekend, baby, I’m about to have me some fun…

Yep, you’re going to have this song in your head all day. You’re welcome!

Also, I’m not sure how much fun I’m going to have this weekend, because as you read this, I’m sitting in the chemo chair at McDicky’s office. Who the hell schedules chemo the day before the best holiday of the summer? That’s right, this ass-clown right here. FAIL.

This is going to be a dose of randomness, because I don’t have any one thing to talk about. Once again, I’ve been all radio silent lately; I’ve had a bad case of writer’s block, and there have been some things going on in my personal life that I’ve had to deal with. Nothing bad, just needed to take a time out. There’s been a fair share of doctor’s appointments and tests, and that takes up much more time than deemed necessary. As much as I dream of it, due to the illnesses and the time they consume, I’ll never be a Monday-Friday blogger. And sometimes, 3 weeks may pass…

Today marks day 18 of my 21 Day Sugar Detox. Lots of you have emailed asking how it’s going, or if I disappeared from blog world because I murdered someone for an Oreo. It feels like my own personal Hunger Games. Somehow, I’ve stuck with it, and so far my only transgression is when I licked one of my nephew’s Fruit Loops. Toucan Sam was telling me to follow my nose (I may or may not have stuck my nose in the box and sniffed the sugary goodness).  Once the 21 days are over, I will dedicate a post getting into detail about the food choices, cravings, mood swings, bowel movements…  Let’s just say I am SO very proud of myself, I didn’t think I’d make it. And if this Cool Mint Oreo stuffed gal can do it, ANYONE can!

Staying on the subject of getting myself in better shape, I got one of those FitBit bracelets. Yep, I jumped on the bandwagon, and had to have one. But lucky for me, two very generous friends got one for me, and even bought me a purple band! I’m a lucky gal, indeed. I love being able to track my steps for the day, monitor my sleep (I sleep like shit), and I’m able to keep track of calories in and calories out. 
I’ve also been working out, trying to get these post high dose steroid wasted muscles and joints back in some sort of working order. A friend and I walk a few nights a week, last night I walked round my neighborhood myself, did 5 Minute Abs on On-Demand (my version was 1 minute and 47 second Abs), and I’ve been slooooooowly doing things at the gym. I took another swim class and got schooled by all of the old biddies. I’ve said countless times, I never expect to ever get back to where I was before this never-ending flare began in early 2012, but, every day I have a little more strength and look a little more like me. 

You all know I’m a realist when it comes to my diseases, and even though I’m still working on getting this forever flare under control, there’s no doubt in my mind that another flare like this will occur in the future. I mean, I will do what I can to prevent it from happening, but sometimes, it’s beyond anyone’s control. It’s similar to doing anything in your power to prevent your house getting wrecked in a hurricane, but still the inevitable happens, and you’re left with a pile of rubble to rebuild. The memories of what it was and what you had will ALWAYS be with you, but you know no matter how hard you try, it will never quite be the same. In my case my house is my body, and it’s deteriorated muscles, brittle bones, damaged organs and a bald head I was left with to regrow and rebuild.

Lupus is some scary shit, already damaging my heart, lungs and brain, but losing my hair in late 2012 was a toughie. It began with my already thin hair becoming more thin and brittle, but ultimately came out in clumps.

Poor Sarah Michelle. I know what she did last summer…
Hair loss 2012: The faint red patches are lupus rashes.

Which led to making that shit by bitch, and buzzing the rest off. Hair… OFF!
Circa November 2012
I purchased some wigs to get me through the cold, hairless winter, but I quickly learned how damn itchy and HOT they are. I couldn’t afford a human hair wig, and unfortunately, insurance doesn’t cover wigs for lupus hair loss (YES, hair loss is a common effect of lupus!), only cancer related hair loss. So after awhile, as much as I loved wearing different hairstyles, the acrylic wigs got old.
I was recently contacted by someone from WigsBuy.com to write reviews for their blog. In return for writing posts, I was sent one wig to try and review. When I first looked on the site, I was overwhelmed at the endless choices offered, but soon realized they cater to everyone’s needs and price points. They have synthetic wigs priced as low as $37.99 to human hair wigs as high as $500. There are literally hundreds to choose from, one day you can wake up and decide to be Christina Hendricks (if only wearing the wig gave you her body), and later that night transform into Gisele (Tom Brady not included). 
Wavy Red 100% Human Hair wig
Long Wavy 100% Human Hair wig

The downside to purchasing online is obviously not being able to try on different styles and colors, but as I’ve learned over the years in dealing with lupus, you often don’t leave the house for days, even weeks at a time except for doctor’s appointments. And if you’re experiencing insomnia due to pain or high dose steroid side effects, you can shop at 4am from the comfort of your bed! After receiving my wig, I was extremely impressed by how true to the picture it is. Stayed tuned next week where I will provide photos, review the wig, and do my first video (yipes!) putting on and styling it.

At first, I was tempted to choose a style outside my comfort zone (like my Beyonce wig!), but decided to opt for something resembling my own hair texture. I’m channeling my inner Olsen twin (You got it, dude!), and ending up going with pretty, fairly plain and simple. I’ve never been good at styling my own hair, and realized this wavy, slightly messy ‘do would be natural for me. 

Again, next week I will provide a post with more pictures, tips, more links to WigsBuy.com, and a video of little ole me putting on my weave!

Thank you WigsBuy.com for this cool opportunity, and allowing me to share your products with not just the lupus community, but anyone suffering from hair loss.

Thank you to my readers to sticking around for another unplanned hiatus, believe me, the love never goes unnoticed. Everyone (in the USA) have an amazing 4th of July weekend, BE SAFE, leave the fireworks to the professionals (July 4th weekend was horrible when I worked as a surgical/trauma nurse), practice Operation Hydration (drink water between each alcoholic beverage), make sure your kids wear their bicycle helmets, eat lots of yummy BBQ food since I can’t (damn sugar detox), wear your sunscreen (skin cancer DOES NOT discriminate no matter how tan you are!!!!), and have FUN!!!!

Love you all!

Linking up with Nicole

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Comments

  1. You go girl making a video! Can't wait!!!

    Awesome job on the exercising and sugar detox.

  2. oh i can't wait to see the video! sounds like you are kicking ASS on the sugar detox. that is tough stuff. way to go!!

  3. Gwen says:

    Well, look who blogged! 😉 I am SO impressed you've stuck to the sugar detox. Can't wait to see the wig selection. I actually just got an email from them yesterday and it's funny because I was thinking recently about trying a long hair wig for fun because sometimes I miss my long hair, but it just isn't practical anymore for every day. Love you bunches!

  4. holli says:

    WOW- you go girl for sticking to the new sugar diet! Licking the fruit loop cracks me up. I am on the fence about the Fitbit. I think I want one too. Not sure yet. They're kinda pricey.
    Cant wait to see the wig video. Are you wearing the She-Ra costume too?! Love you lots and hope you have a fantastic festive weekend.

  5. It's great how your wig stayed on through water aerobics (haha)! I'm excited to read more about the wigs you got and WTF about insurance only paying for certain illness-induced hair loss???

  6. Rachael says:

    Yay, you're back!! I'm so excited for your wig post and video. It will be like I'm finally "meeting" you, getting to hear your voice and all. ….Is that creepy? And congrats on making it to day 18 of the sugar detox!! im so happy for you! I can't wait to read your blog about that, and i'm hoping it will motivate me to do the same. or maybe i need a 21 day bread detox. Everytime I try the whole "eating clean" thing, it lasts exactly 4 days and then i run out of groceries and resort to ordering a pizza. Anyways, I hope you have a good 4th even though you are spending today getting chemo! Hopefully you will feel better by July 10, which is the happiest day of the year, aka, my birthday!!!! Last night I told Tony my bday dinner request: Boboli pizza. He looked at me pretty weirdy. But what can i say, it's my fav!

  7. Tia @ HoPo says:

    Welcome back doll!! Glad you have some wig options…was that photo of you in the white peplum top your real hair? It looked real to me at least…and was super fab! Have a great 4th!

  8. Steph G says:

    I do miss you when you don't blog, but you always come back 🙂 I'm so proud of you for this sugar detox. I laughed out loud when i read the cereal licking part. Hope you have an amazing weekend and make sure you ease back into sugar or it could be a real bad situation 🙂

  9. I am super excited to see these pics. Also if you want me to I will shave my head and make you a wig… But be warned I'm no Martha Stewart

  10. That's just dumb that insurance doesn't cover Lupus related hair loss! If it's from a medical condition, it should be covered regardless of which condition it's from!

  11. AwesomelyOZ says:

    *sigh* my comment didn't make it the first time and I never learn to type in notepad and copy + paste it in the comment section. Bah!! I wear wigs for fun and they are itchy as balls – the synthetic ones anyway. My coworker was telling me about this wig stylist: http://www.touchedbytokyo.com/ His stuff is AWESOME! I want a Beyonce piece for my birthday in January but they're price at $300+ a piece.. He uses a combination of synthetic and human hair so it's really nice looking – check him out modeling it, it's hilarious! Although, he works it like Beyonce! Hope you and Steve have a wonderful 4th of July!!! Don't worry about the silence, I'm silent too until next week 🙂 Take care of yourself and hope you're feeling better – xoxoxo -Iva

  12. Sarah Farris says:

    I can't wait to see your wig! I love water aerobics, but haven't been able to go in awhile–also due to chronic illness. I'm so glad that you got to go back!

  13. Cheriese says:

    I'm so excited to see you in your wig, I love the Olsen twins hairstyle!
    I'm so so so prud of you and how you're going on your sugar detox, I honest cannot believe how long you've lasted (nothing against you dear, I just know I could never keep it up that long!)
    Hope you had a great 4th of July, have a wonderful rest of the weekend! xxx

  14. can't wait to see the wig pics! I'm sure you look amazing 🙂 hope chemo went well, and that your fourth was good. need to catch up soon! I miss my girl!

  15. So the picture of "you" in the pool is awesome, it made me giggle!

    I can't wait to see you channel your inner Olsen, I love the simple wavy look.

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