Welcome to your life, there’s no turning back…
Two posts in a row. Can you freaking believe it? Maybe it’s some weird Friday the 13th ritual.
The journey starting from pulling out of my driveway and finally turning back into my driveway after seeing McDicky was over 5 hours. Yep, 5 hours.
That’s the price to pay for a good rheumatologist. Although, he really needs to make sure his Wifi is working, because it’s agonizing sitting there for that long with no Wifi.
Yeah, yeah, first world problems.
He finally comes in, we talk, he looks at my library of rash photos, checks out my joints, my thinning hair, goes to my chart to see the results of my blood work, and I exclaimed…
Guess what?!? I got a fever, and the only prescription is more cowbell!
Turns out I was wrong. The only prescription is more steroids. For the next two weeks I will be taking 4 times my current dose, so it will be 16mg of medrol (the equivalent of 20mg prednisone) a day, and I’ll increase my oral chemo. In two weeks I’ll restart my infusion, and can taper the steroids.
Why can’t the prescription be three shots of whiskey and an intense, sweaty night with Adam Levine? Or Charlie Hunnam if Adam’s busy?
I finally just lost the 50 pounds of steroid weight, fitting into my size 0 jeans and I have to increase the
fat pills steroids. Blasphemy. The struggle is real, folks.
So yes, my lupus is indeed flaring. Why, no one knows. Perhaps it was jealous of all the attention my boobs were getting.
MarlaJan: So, I have a rash on my right breast, and my plastic surgeon has completely ruled out that it is not an infection. She even put me on antibiotics to put everyone at ease. Do you want to take a look and make sure lupus isn’t trying to eat this tissue expander?
McDicky: (taken aback) Sure….
YoursTruly: Oh c’mon, I’ve had 4 heart surgeries, a double mastectomy, and I worked at Hooters in college. I’m pretty sure the entire free world has seen at least some portion of my boobs. We’re all medical professionals here! (rips down shirt)
It was his lucky day if you ask me.
The rash looks exactly like the rest of the rashes on my body, so McDicky’s expert opinion calls lupus. No concern that it was eating the tissue expander, it just seems to be another place on my body where the rash landed.
More steroids for 2 weeks. I’m going to be a puffy, hangry, hairy, manic, crazy insomniac.
Bring it, bitch.
While I was writing this my dad called to check in. I can tell my mom a lot, but I am a Daddy’s Girl. You know, my voice goes up 3 octaves when we talk… “Hi Daddy!”
He said he read my blog, and wished he could take the pain and go for my infusions if he could. As I held back tears, I reminded him he’s been through enough.
MarlaJan: Daddy, I think you’ve endured plenty. We’re Wexler’s, we got this!
Daddy: You know when I tell people what I’ve been through, they don’t believe me. Heart attack, debilitating asthma, prostate cancer, Chronic lymphocytic leukemia…”
MarlaJan: What the fuck is wrong with our gene pool?!?!?!
We laugh and talk about everything our family has survived, and try to figure out who exactly fucked up our gene pool.
So, as I begrudgingly take my increased dose of steroids for the next two weeks, I just have to remember that I’m a Wexler. Being a warrior is in my genes.
Linking up with Amanda for Friday’s Favorites