Luck Fupus

A lupus blog…

It’s great to learn… ’cause knowledge is power!

Happy Hump Day, loves!

And more importantly….

Holy cow, is Marla writing twice in one week? That I am, remember the good ole days when that occurred often? Now I’m happy if I get in 3 posts a month.

I was going to write about last week’s Transforming Healthcare Conference, but I’m going to wait until pictures from the day are put up on the event webpage. I tried to take pictures, but Shake n Bake (what my sister calls me bc of the steroid tremors) couldn’t snap a clear photo. Womp womp.

Before I get into Lupus Awareness Month festivities, I want to brag tell you about some cool things coming my way.

Apparently, I’m a “trusted voice in the lupus community,” and I’ve been invited to the invitation-only Lupus Summit hosted by Glaxo-Smith Kline. The summit is next week, and there will be other lupus warriors in attendance. I’m excited, I’ve connected with many who have SLE through blog-world, but never in person. There will be discussions on global SLE survey findings, and we will hear what’s new in research & development for SLE at GSK. I’m flattered that I was invited, and I’m stoked to report back to you guys!

Disclaimer- I will be reimbursed for travel expenses, but all opinions and dirty jokes on the summit are my own.

The MM&M Transforming Healthcare Conference was less than a week ago, and I’ve already been approached for a few speaking engagements and opportunities. BOOM! Will go into further details as I get them. (Thank you Shauna and Marc!!!!)

Alright, let’s get into lupus talk.

Linky says “ROAR! Lupus Awareness is the cat’s pajamas!”
To kick off Lupus Awareness Month, the Lupus Foundation of America has unveiled a new multi-media awareness campaign, KNOW LUPUS.
Mark your calendars….
May 14th- World Lupus Day! I will be attending the World Lupus Day Rally at LOVE Park in Philadelphia
May 15th-  Put On Purple Day! Be sure to wear you favorite grape colored clothing, snap some pics and post them so social media with the hashtags #POP and #KNOWLUPUS. And tag me in them!
My sweet blog friend turned real-life friend, Nicole Marica has an online shop, Quilts By Nicole where she makes gorgeous quilts, an more recently has started making teddy bears. Nicole made a beautiful lupus awareness teddy bear, which I have aptly named “Luck Fupus Bear” and is currently auctioning him/her off to the highest bidder on her Facebook page.
Amazing right?!?!?!

The auction ends FRIDAY at 8pm, so please hop over to Quilts by Nicole’s Facebook page and bid on Luck Fupus Bear! All proceeds go directly to organizations that focus on research and finding a cure for lupus! Happy Bidding!
Click HERE to read the full article and get a great understand of lupus and how it can affect the body.

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  1. Lupus warrior! So glad the conference/panel/speaking opportunities are coming your way. You are fierce.

  2. Look at you being all awesome with your speaking engagements. Steph's right you are FIERCE my friend!

  3. holli says:

    I cant wait to hear every single word from you about Lupus. I will be absorbing it to tell Mom. I didn't have a doubt that you wouldn't receive countless invites to be a speaker. So awesome!! I will remember to pack something purple for the 15th because I'll be out of town.
    Have fun and safe travels!! You will have so much fun and they are lucky to have you. xoxoxoxo

  4. What an amazing opportunity for you to share your experience and help others going through it. You rock!

  5. I didn't know it was Lupus awareness month! I remember wearing purple last year because of you! 🙂 I'll be doing it again… in the same shirt though, because it's the only purple thing I own. lol 🙂

  6. AwesomelyOZ says:

    Woop lots of good things lovely!! The symptoms of Lupus is horrific – it's amazing how there is such little awareness of it. Congrats on the summit and can't wait to hear all about it! That bear is also super adorbs 🙂 Have a marvelous weekend MJ! -Iva

  7. I'm glad you're getting these opportunities! Go you 🙂 Gotta find some purple for my picture this wee!

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