Luck Fupus

A lupus blog…

HAWMC #1 (let’s try this again…)

Hi my loves.

So… yeah, this blogging on a regular basis thing just ain’t working out so well for me. I’ve had so many days where I sit down at my laptop, and

the

words

won’t

come.

I’m guessing Shakespeare never had this problem. Bloody hell.

If you read my blog on a regular basis, you know that it was WEGO Health who catapulted me into health blogger stardom. I won their Hilarious Health Activist Award in 2014, and since then, I’ve been privileged to travel the country, raise my loud annoying voice and do what I can to improve healthcare for patients. Without WEGO, my mom and sister would most likely still be the only ones who read this.

I don’t recall that they did it in 2015, but for a few years in a row, I attempted to participate in the WEGO Health Health Activist Month Writer’s Month Challenge. You know the drill, a prompt is given for each day, and I’m supposed to write about said topic. And again, if you know me at all, I lasted, oh, a good 3 or 4 days. There was a nosebleed ER debacle, and one simply cannot blog on a daily basis when tampons are shoved so far up their nasal cavity they’re tickling the frontal lobe. And maybe the year before I gave up on day 9 or 10.

At least I’m consistent.

This year, I set no goal. I’ll try and do it on the days I feel good or have something to write about. Why set myself up for failure?

I didn’t get the prompts for the month until Halloween night and I was working, and yesterday I was in NYC for a conference, so today’s post is yesterday’s prompt. See, I’m already behind.

Consistency for the win!

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Due to major organ involvement from lupus, in 2012 I was forced to leave a job I intended to spend my entire nursing career doing- a job I LOVED. My rheumatologist sat me down, discussed the damage to my heart and lungs and said “Marla, you have to RESPECT the lupus!”

While I have absolutely no respect for this dickbag of a disease, I’ve learned that lupus has left me with limitations, and I’ve finally accepted that.

R-E-S-P-E-C-T, fuck you lupus.

Ahem.

When I left work, I was angry and devastated. I was scared, I felt alone and isolated. I’d been working since the day after my 14th birthday (would you like fries with that?), so being home during the day at the age of 30 when everyone around me is out being useful members of society…

No sir, I didn’t like it.

So the story goes, my sister and friend Penny encouraged me to start writing a blog, and as most of you have no doubt picked up on from my bad grammar and use of run-on sentences, a blog does not a writer make.

But 4.5 years later, here I am. Still writing. Sharing my story to anyone who will listen. Being loud. Having no filter. Striving for change.

I’ve been privileged to meet some of the most amazing people, warrior health advocates like me who understand the challenges we face daily living with multiple chronic illnesses. I’ve learned so much from every single health activist I’ve crossed paths with in these 4.5 years. Our stories are similar in many ways, yet our journeys are extremely different. That’s what I love about doing what I do; we all bring something extraordinary to the table.

So until someone tells me to shut my trap already, I’m gonna keep this up. Being sick has been a (very, very shitty) blessing in disguise. I’ve learned more about myself, the type of person I want to be, what I can handle, and really, just how big of a bad-ass I really am.

Love you all.

Comments

  1. Olga Wexler says:

    I have known you’re a bad ass from the day you were born and I love you heart and soul❤️

  2. Jennie k says:

    I love your foul mouthed sarcasm, I feel right at home. THANK YOU for all your hard work making a difference. I feel like the useless 34 year old who contributes nothing to society myself. And lupus is currently kicking my ass foreword and back! You’re inspiring

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