As Seen In

Coming Up Next

March 7th

GlaxoSmithKline annual sales meeting – giving a presentation on use and experiences of the lupus medication Benlysta

March 11th & 12th

Patients as Partners in Philadelphia. Participating on a panel about clinical trials

What I’ve Done

2018 Speaking Engagements

2018 BioNJ Patient Advocacy Summit Summit, NJ (Panelist)
2018 DrugDev Annual Summit Philadelphia, PA (Panelist)
2018 American College of Rheumatology Annual Meeting Chicago, IL (Speaker)
2018 Intellus Worldwide Summit Philadelphia, PA (Keynote Speaker)
2018 Compassionate Care Coalition of CA Annual Summit Anaheim, CA (Speaker)
2018 World Congress Pharma4 Philadelphia, PA (Speaker & Panelist)
2018 Patient as Partners Philadelphia, PA (Panelist)
2018 BioClinica/Facebook LIVE Philadelphia, PA (Speaker)
2018 Janssen Pharmaceuticals New York, NY (Patient Partner)
2018 Havas Health/AstraZeneca New York, NY (Speaker)
2018 ExL Events Crown Congress Philadelphia, PA (Speaker & Panelist)

2017 Speaking Engagements

2017 Eyeforpharma Patient Summit Philadelphia, PA (Speaker)
2017 Merck Annual Meeting Lambertville, NJ (Speaker)
2017 World Congress Pharma4 Philadelphia, PA (Panelist)
2017 Eyeforpharma Annual Conference & Awards Philadelphia, PA (Panelist & Judge)
2017 Iilex Health Conference Philadelphia, PA (Speaker & Panelist)
2017 exL Adherence Conference Philadelphia, PA (Keynote Speaker)
2017 Patient’s as Partners Conference Philadelphia, PA (Panelist)

2016 Speaking Engagements

2016 Kantar Health Fragment Nation Conference New York, NY (Speaker)
2016 Healthline Summit New York, NY (Panelist)
2016 Eyeforpharma Patient Summit Philadelphia, PA (Panelist)
2016 The Patient’s Voice Conference New Brunswick, NJ (Panelist)
2016 MM&M Transforming Healthcare Conference New York, NY (Panelist)
2016 Jack M Barrack Hewbrew Academy Human Rights Conference (Speaker)

2015 Speaking Engagements

2015 Flip the Clinic Summit Denver, CO (Flip #72 creator, Team Leader, Speaker)
2015 eXl ePatient Connections Conference Philadelphia, PA (Speaker)
2015 MM&M Transforming Healthcare Conference New York, NY (Panelist)- The Patient View on Transformation: Empathy, Education and Empowerment
2015 NJ Life Sciences (EY) & Health Care Summit Princeton, NJ (Panelist)- How Patient Engagement Influences Outcomes in a Consumer Driven World
2015 Incyte Polycythemia vera Social Media Patient Leader Advisory Board New York, NY (Speaker/social media expert)- Patient Advocacy in Social Media: Learning From Best Practices
2015 Cadient Group (Speaker)- invited to speak to the company about living with multiple chronic illnesses, social media, and patient centricity
2015-2011 The Children’s Hospital of Philadelphia Philadelphia, PA (Speaker)- Heart and Mind Day

2014 Speaking Engagements

2014 eXl Patient Connections Conference Philadelphia, PA (Roundtable leader)
2014 Business Development Institute’s Patient Engagement: The Future of Healthcare Communications Summit & Roundtables New York, NY (Panelist)- Painting the Starting Line Together: How Industry & Patients Must Partner To Define Engagement Goals
2014 Artcraft Health (Speaker)- invited to speak at annual company meeting about living with multiple chronic illnesses

Advocacy 2016-2019

2019 WEGO Health and AstraZeneca Lupus Community Insight Group
2018 AstraZeneca Lupus Patient Partnership Program (Patient Partner)
2017 PCORI Annual Summit Washington, DC (Patient Scholar)
2017 Stanford Medicine X Stanford, CA (social media reporter for WEGO Health)
2017 Stanford Medicine X Stanford, CA (Storyteller ePatient Scholar)
2017 Joe Mason Podcast Marlton, NJ (Interviewed for local southern NJ podcast about patient advocacy work)
2017 DxTerity LIFT Study (Writer and reviewer for lupus research study)
2017 6ABC Action News Philadelphia, PA (Interviewed by local news broadcaster about living with the same congenital heart defect Jimmy Kimmel’s son has)
2017 Janssen Healthevoices Summit Chicago, Il (Patient Scholar)
2017 Compassionate Care Coalition of CA Annual Summit Sacramento, CA (ePatient Scholar)
2016 PCORI Washington, DC (Patient Scholar)
2016 Standford Medicine X Stanford, CA (Precision Medicine & Research ePatient Scholar)
2016 Adult Congenital Heart Defect 8th Annual Conference Orlando, FL
2016 Compassionate Care Coalition of CA Design Thinking Workshop Sacramento, CA (ePatient Scholar)
2016 Stupid Cancer New York, NY Interviewed by Matthew Zachary for weekly Podcast
2016 Compassionate Care Coalition of California Annual Summit Newport, CA (ePatient Scholar)
2016 Health Datapalooza Washington, DC (ePatient Scholar)
2016 Patients as Partners Conference, Philadelphia, PA (ePatient Scholar)
2016 ePharma Summit New York, NY (social media reporter for WEGO Health)

Awards

Advocating For Another
Awarded Top 30 Lupus Blog
Best Blog In Show
Healthcare Collaborator Patient
Hilarious Patient Leader
Patient Leader Hero
Winner Hilarious Health Activist