Luck Fupus

A lupus blog…

Can I handle the seasons of my life?

Hello my loves, It’s been 6 weeks back at work, and I’m… exhausted. In the wise words of The Fresh Prince of Bel-Air, my life got flipped turned upside-down. I feel like I’ve been in a daze, yet at the same time it feels the past 5 years didn’t actually happen. On my first day back at CHOP I walked in … Continue reading

The Fay Farm Serenity CBD Lotion

*Disclaimer- This is a sponsored post. I have been given this product as part of a review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions remain my own and I was in no way influenced by this company. * When you live with a chronic illness that causes pain, it changes you. Over time, … Continue reading

The glow that the sun gives right around the sunset, helps me realize this is just a journey…

Infusion Friday #lupus #luckfupus #chemo #port #spoonie #chronicbadass #chronicillness #autoimmune #warrior #chd #openheartsurgery

<— ballin at chemo last Friday As I write, Andy Grammer is performing live on the Today Show. I had this post titled with a line from a different song (a bit more of a depressing line), but hearing Andy singing has changed my mood, and in turn, changed the tone of this post. Music truly is my therapy. It’s … Continue reading

Self Care Catalysts

“This is a sponsored post for Self Care Catalysts. I have been compensated through the Chronic Illness Bloggers (http://chronicillnessbloggers.com/chronic-illness-bloggers/) network. All opinions remain my own and I was in no way influenced by the company.” Hello my loves and happy unofficial start to the summer! I know it’s been brought up here on more than one occasion that I’m an … Continue reading

Let’s hear it for the boy(s)!

If you frequent my blog, you know that the titles of all the posts are song lyrics, an idea I shamelessly stole from my sister, Brie. Writing was never my strong suit (science nerd since birth, here) and the thought of trying to come up with a pithy title for each post frightened me. Plus, having “Go fuck yourself, lupus” … Continue reading

PSA- Purple Service Announcement

Hey kids! In cased you missed it on the 9 million other posts I’ve put on the interwebs over the last few days, Friday, May 20th is Put On Purple Day for Lupus Awareness! Dig through your drawers and find something purple to wear. Paint your nails plum. Wear purple panties. Have your kids’ orthodontist put purple rubber bands on … Continue reading

It’s Never Lupus

Before my diagnosis, I didn’t know too much about lupus. In nursing school, I think lupus was mentioned once during a medical-surgical lesson, and the only thing that was drilled into our brains was that majority of patients present with the malar rash. Note- When I sat for my nursing boards, there was a question on lupus. But as I … Continue reading

Take these broken wings and learn to fly…

You know that inevitable question during a job interview, “So tell me where you see yourself in 5 years?” I detest that question, and I always seem to find myself scrambling my brain to come up with an adequate response because I’m certain “hopefully still employed and not smoking crack in some dark alley,” would no doubt be frowned upon. … Continue reading

Nimble, the one finger package opener

Chronic illnesses suck. Yep, there I said it. Every morning I wake up with aches and pains that I never thought I’d be dealing with until I was well into my seventies. And as my achy ass trudges down into the kitchen every morning, bleary eyed, hands throbbing, I stumble to the Keurig to make some liquid gold (read: coffee). … Continue reading

Hello? Is it me you’re looking for?

I know, I know, several weeks between posts is terrible. I’ve been going through a lot personally, and the blog of mine has been on the back burner. I’m OK, and sorry to be vague, just dealing with some tough stuff… I’ll bounce back as always. On a happy note, I’ve FINALLY graduated to seeing the Physician’s Assistant at McDicky’s … Continue reading

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