Luck Fupus

A lupus blog…

And it hurts to want everything and nothing at the same time…

Oh 2016, I’m not sorry to see you go. Health-wise 2016 was no doubt the best year I’ve have since 2010, but personally? Well, 2016 can suck it. It was the first year I haven’t had any type of surgery in FIVE YEARS. Crazy, right? It was odd when the holidays rolled around and there was nothing scheduled to go … Continue reading

HAWMC #3

Hello my loves. I’m skipping Day 2 of the HAWMC. Why? Because I do what I want. Today’s prompt: I could have chosen from one of a million quotes/song lyrics that have meaning to me, but it made sense to go with the one that is permanently inked on my body. I’ve been dealt a few shitty hands in life. … Continue reading

HAWMC #1 (let’s try this again…)

Hi my loves. So… yeah, this blogging on a regular basis thing just ain’t working out so well for me. I’ve had so many days where I sit down at my laptop, and the words won’t come. I’m guessing Shakespeare never had this problem. Bloody hell. If you read my blog on a regular basis, you know that it was … Continue reading

I’ll make the most of all the sadness…

Hello my loves, It’s been quite a week, and it’s only Wednesday, not to mention Monday was a holiday. My head has been spinning lately as the reality of the big ‘D’ kicks in. While I think it’s the best decision for both him and I, it’s overwhelming and makes my heart heavy. I’ve been waiting for the big “A-Ha!” … Continue reading

Sweet dreams are made of this…

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in now way influenced by the company. For as long as I can remember I’ve suffered from insomnia. I remember sleepless nights dating as far … Continue reading

Can I handle the seasons of my life?

Hello my loves, It’s been 6 weeks back at work, and I’m… exhausted. In the wise words of The Fresh Prince of Bel-Air, my life got flipped turned upside-down. I feel like I’ve been in a daze, yet at the same time it feels the past 5 years didn’t actually happen. On my first day back at CHOP I walked in … Continue reading

The Fay Farm Serenity CBD Lotion

*Disclaimer- This is a sponsored post. I have been given this product as part of a review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions remain my own and I was in no way influenced by this company. * When you live with a chronic illness that causes pain, it changes you. Over time, … Continue reading

The glow that the sun gives right around the sunset, helps me realize this is just a journey…

Infusion Friday #lupus #luckfupus #chemo #port #spoonie #chronicbadass #chronicillness #autoimmune #warrior #chd #openheartsurgery

<— ballin at chemo last Friday As I write, Andy Grammer is performing live on the Today Show. I had this post titled with a line from a different song (a bit more of a depressing line), but hearing Andy singing has changed my mood, and in turn, changed the tone of this post. Music truly is my therapy. It’s … Continue reading

Self Care Catalysts

“This is a sponsored post for Self Care Catalysts. I have been compensated through the Chronic Illness Bloggers (http://chronicillnessbloggers.com/chronic-illness-bloggers/) network. All opinions remain my own and I was in no way influenced by the company.” Hello my loves and happy unofficial start to the summer! I know it’s been brought up here on more than one occasion that I’m an … Continue reading

Let’s hear it for the boy(s)!

If you frequent my blog, you know that the titles of all the posts are song lyrics, an idea I shamelessly stole from my sister, Brie. Writing was never my strong suit (science nerd since birth, here) and the thought of trying to come up with a pithy title for each post frightened me. Plus, having “Go fuck yourself, lupus” … Continue reading

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