Luck Fupus

A lupus blog…

Send my love to your new lover, treat her better…

Several years ago I wrote a blog post- you can read it here if you wish.  Old blog post about marriage and chronic illness. If you don’t want to read it, basically I discussed that I felt my body rejected our marriage from day one; the toll getting sick 3 weeks after our honeymoon took on us, and how during a … Continue reading

An untold story…

This blog post is the transcript of a talk I gave this past April at the Coalition for Compassionate Care of California 2018 Annual Summit. I was asked to speak to a roomful of 300+ strangers about PTSD, the trauma I experienced undergoing multiple heart surgeries as a young child, and how it has made me into the person, good … Continue reading

The rhythm is gonna get you tonight…

Hi my loves For several years now I’ve been getting short of breath with exertion, whether I was exercising, walking up flights of stairs, or having sex (Daddy, if you’re reading this in heaven, the jig is up. I’m not a virgin).  After awhile I become exhausted and find myself gasping for air. I hit a wall, and whatever it … Continue reading

Time can bring you down, time can bend your knees…

I have never felt more alone than I have in the last 6 months since Daddy died; the grief is suffocating. Mind you, I have friends and family who check in on me every day, but I can’t kick the perception of being isolated. Most days I don’t want to get out of bed, and more often than not, I … Continue reading

…time on my hands could be time spent with you.

There’s a club that many people become a part of, but no one is ever prepared for. Not the Fight Club, but this one is just as taboo and most don’t talk about it either. It’s the Dead Parents Club, and I became a member last week. Pardon my bluntness, but as I sat to type I knew there was … Continue reading

…and those new boobs just aren’t you.

As the leaves change, flip flops become Uggs, October starts, and we embrace the beauty of fall. Cool nights, haunted hayrides, baggy sweaters, pumpkin spice lattes- and the pinkwashing of everything in existence for the month. What is pinkwashing, you ask? Pinkwashing is a phrase coined by Breast Cancer Action as part of the Think Before You Pink campaign. Pinkwasher: (pink’ … Continue reading

She blinded me with science…

This was supposed to go live tomorrow. But I got some news tonight (Tuesday), I have horrible insomnia and I finished early. And when I say “early,” this post was actually meant to go up last week. #operationprocrastination Hi My Loves! One of my favorite bloggers, turned real-life friend Stephanie, of Life According To Steph and Pug Mother fame, writes a post … Continue reading

But I’ve got a blank space, baby…

Worst. Patient. Advocate. Ever. I don’t even know where to start, but I know that for months (years?) now I’ve been saying, “Yes! I’m finally getting my mojo for blogging back.” And you know what? I was lying. I mentioned in a previous post that two of the most stressful things a person can do in their adult life is … Continue reading

DxTerity LIFT Study- Part Deux

Hi my Loves, Over the last few weeks since the previous blog went live, I’ve seen so many social media posts of fellow Lupus sufferers enroll in DxTerity’s LIFT Study. It’s only going to be beneficial for those of us with lupus that we try to get as much data marking our disease activity as we can, and we can’t … Continue reading

Dxterity- LIFT Study

Join others with lupus in a groundbreaking research study you can do from home and receive $75 for your time. Everyone’s journey with lupus is unique – from diagnosis, to treatments, to flare triggers. That’s why researchers at DxTerity, a genomics company, are developing an at-home blood test for people living with lupus to monitor their disease activity. LIFT (Lupus … Continue reading


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