Luck Fupus

A lupus blog…

This could be Heaven or this could be Hell…

  Since the beginning of 2016, the entertainment industry has been hit hard with the deaths of some of its most influential stars. It began with the death of David Bowie, music legend extraordinaire. While I wouldn’t call myself a die-hard Bowie fan, I always appreciated the influence he had over music for many decades. Soon after, Harry Potter and Die … Continue reading

Big time, I’m on my way I’m making it…

You know that feeling after a fantastic first date, when you find exactly what you are looking for in your size, or a colleague you respect gives you praise? Best feeling in the world. That’s basically how I felt after driving home from the ePatient Connections Conference in Philadelphia a few weeks ago back in October. Yes, I am REALLY delayed getting … Continue reading

The Magical Mystery Tour…

Hello Loves! Just a quick update because I’ve gotten a few people reaching out wondering the outcome of the cardiac catheterization. I had it done on December 30th at The Children’s Hospital of Philadelphia. It’s always comforting when I have the chance to have procedures/tests done there, I feel like I am in the best hands and trust my medical … Continue reading

I think a change would do you good…

  Hello and Happy New Year!! It’s hard to believe that 2016 is now upon us. In the Philadelphia area, it was 73 on Christmas Eve, so getting into the holiday spirit was difficult. But as I sit here and write this in my favorite Starbucks, it’s a winter appropriate 30 degrees outside, and all is as it should be. … Continue reading

‘Cause I’m a woman! W-O-M-A-N, I’ll say it again…

Fasten your seatbelt folks, it’s 2 days in a row of posts from me! What gives, right? Apparently, I really like to have surgery at the end of the year. Yesterday was the 28th anniversary of my last open-heart surgery, November 26th was the 2 year anniversary since my tubal ligation, and today is one year from when I had my … Continue reading

Out of the blue…

The day I got my pink nails polish

November 30th, 1987. On this day 28 years ago I was looking back to wave to my mom and dad one last time as I was wheeled into an operating room on the 4th floor of the Children’s Hospital of Philadelphia. November 30th marks 28 years since my last open-heart surgery. I had my 6th birthday three months prior, and at that … Continue reading

Don’t ever let life pass you by…

Since my double mastectomy, I have had the hardest time putting words to the page (keyboard). I never thought there was a corrollation between boobs and brain, and I can only wonder if there’s a slow leak in one of my implants and silicon is making it’s way into my brain. It would explain a lot. I can’t find it … Continue reading

I’m gonna make a change, for once in my life…

Hello loves! It’s my favorite month of the year, the Month of Marla! Some celebrate his or her birthday just on the day alone, some for the weekend, but, oh no, not me. I take the entire month of August. Why? Because I can. The happiest day of the year was August 7th, and I turned 29 again a whopping 34 … Continue reading

So what, so I’ve got a smile on?

Do not adjust your computer/smart phone screens. It really is a post from me. I fell off the grid, and I’m honestly not all that torn up about it. I took time to unplug and recharge my batteries, and just as I was ready to plug back in, so to speak, it was time to restart chemo. I’ve had two three … Continue reading

Start wearing purple for me now…

LupusPutOnPurple1

Happy Friday Eve, mofos! It’s been one of those weeks that at first seemed to drag, and now I’m all ‘holy shit, it’s Thursday already?!?!?” I still haven’t written about the Transforming Healthcare Conference or the Lupus Summit at Glaxo Smith Kline, but I’ll get there. I promise. Today I’m restarting chemo after a 2 month hiatus for the breast … Continue reading

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