Luck Fupus

A lupus blog…

HAWMC #3

Hello my loves. I’m skipping Day 2 of the HAWMC. Why? Because I do what I want. Today’s prompt: I could have chosen from one of a million quotes/song lyrics that have meaning to me, but it made sense to go with the one that is permanently inked on my body. I’ve been dealt a few shitty hands in life. … Continue reading

HAWMC #1 (let’s try this again…)

Hi my loves. So… yeah, this blogging on a regular basis thing just ain’t working out so well for me. I’ve had so many days where I sit down at my laptop, and the words won’t come. I’m guessing Shakespeare never had this problem. Bloody hell. If you read my blog on a regular basis, you know that it was … Continue reading

I’ll make the most of all the sadness…

Hello my loves, It’s been quite a week, and it’s only Wednesday, not to mention Monday was a holiday. My head has been spinning lately as the reality of the big ‘D’ kicks in. While I think it’s the best decision for both him and I, it’s overwhelming and makes my heart heavy. I’ve been waiting for the big “A-Ha!” … Continue reading

Sweet dreams are made of this…

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in now way influenced by the company. For as long as I can remember I’ve suffered from insomnia. I remember sleepless nights dating as far … Continue reading

Can I handle the seasons of my life?

Hello my loves, It’s been 6 weeks back at work, and I’m… exhausted. In the wise words of The Fresh Prince of Bel-Air, my life got flipped turned upside-down. I feel like I’ve been in a daze, yet at the same time it feels the past 5 years didn’t actually happen. On my first day back at CHOP I walked in … Continue reading

The Fay Farm Serenity CBD Lotion

*Disclaimer- This is a sponsored post. I have been given this product as part of a review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions remain my own and I was in no way influenced by this company. * When you live with a chronic illness that causes pain, it changes you. Over time, … Continue reading

The glow that the sun gives right around the sunset, helps me realize this is just a journey…

Infusion Friday #lupus #luckfupus #chemo #port #spoonie #chronicbadass #chronicillness #autoimmune #warrior #chd #openheartsurgery

<— ballin at chemo last Friday As I write, Andy Grammer is performing live on the Today Show. I had this post titled with a line from a different song (a bit more of a depressing line), but hearing Andy singing has changed my mood, and in turn, changed the tone of this post. Music truly is my therapy. It’s … Continue reading

Self Care Catalysts

“This is a sponsored post for Self Care Catalysts. I have been compensated through the Chronic Illness Bloggers (http://chronicillnessbloggers.com/chronic-illness-bloggers/) network. All opinions remain my own and I was in no way influenced by the company.” Hello my loves and happy unofficial start to the summer! I know it’s been brought up here on more than one occasion that I’m an … Continue reading

Let’s hear it for the boy(s)!

If you frequent my blog, you know that the titles of all the posts are song lyrics, an idea I shamelessly stole from my sister, Brie. Writing was never my strong suit (science nerd since birth, here) and the thought of trying to come up with a pithy title for each post frightened me. Plus, having “Go fuck yourself, lupus” … Continue reading

PSA- Purple Service Announcement

Hey kids! In cased you missed it on the 9 million other posts I’ve put on the interwebs over the last few days, Friday, May 20th is Put On Purple Day for Lupus Awareness! Dig through your drawers and find something purple to wear. Paint your nails plum. Wear purple panties. Have your kids’ orthodontist put purple rubber bands on … Continue reading

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