Luck Fupus

A lupus blog…

“And put your car on cruise and lay back cause this is summertime…”

Hello, my loves! Happy Friday, and more importantly, happy first day of summer! Make sure you all take advantage of the longest day of the year! It was a pretty slow week, the only medical related thing I had to do was get blood work. Next week, is another story. I have 3 doctor’s appointments, and my chemo. Fun times. … Continue reading

“Now check this out, one day back in Philly…”

What. A Weekend. I spent all of Monday recovering, but it was worth it! After months of waiting, it was finally time for… 98 Degrees, New Kids On The Block and Boyz II Men I wasn’t a 98 Degrees fan, but New Kids and Boyz II Men were both a staple of my growing up. There was no way in … Continue reading

“Step five, don’t you know that the time has arrived?”

Happy Friday, my loves! As I type this, I have a fuzzy little Linky Cat sitting on my lap. He is so stinking cute and funny, and I really cannot believe how happy he makes me. Pretty sure I’m 2 made up songs away from being a crazy cat lady. 1. Tomorrow is the day of The Package Tour aka … Continue reading

“Caught a lite sneeze…”

Hello my loves! Sorry for the almost two week hiatus, but as always, it’s never a dull moment here in Lupus Land. On June 4th I had my last Venofer infusion and will have some blood work done next week to see if my levels are where they need to be. My hematologist wants my ferritin level over 100, and I … Continue reading

“Kudos to those who see through sickness…”

Hello my loves. It’s after  one AM and I am bouncing around like a loon. I had my infusion this morning and got the dreaded 80mg methylprednisolone premed. I gots me the steroid j-j-jitters. I also have the prednisone munchies. In a matter of five minutes, I devoured two pepperoni/cheese sticks (the inventor of them is a god in my … Continue reading

“All gave some and some gave all…”

Happy unofficial start to the summer!! It was a lovely long weekend here. I went to visit my friend Melissa, her sister Joanna, their mama who was in from Florida, and their assorted children. Megan (who recently got hitched to Rachael) was there, too. It was nice to visit with friends who I don’t get to see as often as … Continue reading

“Someone call the doctor, cause I lost my mind…”

Going to the doctor can be an unnerving experience. Even if it is just for a yearly checkup, knowing the physician could potentially find something is frightening. I know people who avoid the doctor for that very reason; the fear of learning something is wrong. Hearing that you have an incurable, chronic disease is devastating. Though you may have been … Continue reading

“My stupid mouth, has got me in trouble…”

I have this funny little habit of putting my foot in my mouth. I think I’m being hilarious, but more often than not, I end up offending someone or making myself look like an ass. Or both. Steve’s brother Dave and his wife Kelly live on the estate side of our development. They are the Farms, we are the Meadows, … Continue reading

“Purple rain…”

Happy Monday, my loves! Today is the birthday of two of my most favorite people- my Mama and Brian Steen-Brian Steen! Happy HAPPY Birthday tooooooo yooooouuuuuuu! I had one of those weekends filled with the warm fuzzies. The amount of purple love that poured in on Friday for Put On Purple Day was astounding!!! LUCK FUPUS!!!!!! The days were busy … Continue reading

“Start wearing purple for me now…”

Happy Friday, my loves! The big day is finally here! What day do you ask??? Via I Googled “songs about purple” and found this song “Start Wearing Purple,” by Gogol Bordello. Never heard of em. Apparently, the song is about some loony broad who wears purple all the time. Sounds about right. Thanks to everyone who shared my Facebook posts … Continue reading


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Somebody’s watching me…

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