Luck Fupus

A lupus blog…

“Nobody said it was easy…”

Hello my loves. I wanted to thank you all for the support and kind words yesterday. Nick’s funeral was surreal, and I have to be honest that it went by in daze. Even though he hasn’t been in my life for quite some time, I guess I always took for granted that he was still a part of the world. … Continue reading

“Pulled away before your time…”

Hello my loves. It’s been an emotional past few days. I learned the man I talked about in this post passed away last Friday, after an almost 3 year battle with cancer. He was 33. Nick and I were together for close to 3 years, and he was my only other true significant relationship aside from Steve (I don’t count my college … Continue reading

“I’ve got Friday on my mind…”

Happy Friday, my loves! After a few days of feeling like death warmed over, I’m finally starting to feel somewhat better. Just to do it all over again on Tuesday…. But, who’s complaining? Steve and I have plans tonight that I am very much looking forward to, and then I’m doing a whole lot of nothing. It’s like my brain … Continue reading

“But life is both a major and a minor key…”

Happy Friday Eve, my loves!!! This week has flown by, and not because I am doing anything fun or exciting. One of the medications I take, Plaquenil, causes damage to the retina of the eye. Over the past 7 months, I’ve been on a higher dose than usual while we were waiting for the infusion medication to start doing its … Continue reading

“Man made up a story, said that I should believe him…”

Hello, my loves. In the week leading up to my cardiac catheterization, I became all out of sorts. I’m hoping this week I’ll be able to get back into my groove, despite many doctors appointments and starting my new infusion later this morning. Anyone who reads my blog on a regular basis, knows that over the past year or two, … Continue reading

“Bother me tomorrow, today, I’ll buy no sorrows…”

In the weeks leading up to my official lupus diagnosis, I spent a great deal of time on the interwebs, hitting The Googles, and pouring over my nursing books. I joined discussion boards and even spoke to a friend of Brie’s who had been diagnosed with lupus a few years prior. Putting the pieces of this diagnostic puzzle together, I knew … Continue reading

“I ain’t changed, but I know I ain’t the same…”

One year. 365 days out of work, not getting a paycheck. It’s been one year since I’ve administered lasix (not counting to myself), drawn labs off an arterial line, hand-ventilated a patient or said to a parent “I’m Marla, and I will be your nurse for the next 12 hours.” In some ways, it seems like the time has flown … Continue reading

“Head under water, and you tell me, to breathe easy for awhile..”

Hello my loves. My brain feels like the “This is your brain on drugs,” commercial. Not that I’m doing any mind-altering drugs (unless prednisone counts) but there is just way too much going on inside my head right now. This is probably going to be all over the place. Word vomit, if you will. Yesterday I received news that someone … Continue reading

“This girl’s an open page…”

Hello my loves! Monday is upon us, another weekend behind. One week until my cardiac catheterization. Lots of doctors appointments, tests, and blood work this week. You know, the usual. Friday I felt like hell, so I laid in bed all day.  I cancelled plans for coffee with my friend Tracey, I just could not get moving. Everything hurt. It … Continue reading

“You’ve got no one to blame for your unhappiness…”

Hello my loves! What a week, I’m glad it’s almost over. It’s been the type of week that when you turn on the news or answer the phone, you don’t hear anything good. I had an epiphany while rocking out to some Wilson Phillips in the car yesterday, but unfortunately, I can’t really divulge any further. Anywho, it’s Friday, bitches! … Continue reading


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Somebody’s watching me…

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